Wednesday, December 18, 2013
My plate was full. Then 2013 came along, and I suffered a major break to my leg. A summer of physical therapy, the continuing growth of my consulting work, and the continuing care of my mother has left me with very little time. Except for the broken leg, it has been a very fulfilling year. I love my work, but starting a business is time consuming, and I just cannot have my focus spread in too many directions.
Yes, I still have fibro, but when life is treating you well, it is amazing how much less of an effect it has. I want to complete this book, but I need to focus on my business first. So I have not lost interest, I just need to regroup.
Tuesday, April 3, 2012
At that time in the 50s there wasn’t much known about lupus, "but I had a good diagnostician. He said I had either syphilis or lupus. How could I have syphilis!" Woody said laughing.
"They put me on prednisone at that time, and I’ve been on it ever since."
Unfortunately, the lupus also caused hair loss. That amazing hair was a wig. The fibromylagia diagnosis was not made until 1993. "I had an accident where I had a compound fracture in my wrist and had to have hand therapy.
I get spasmodic pain. It could be anywhere. It could be my toe, the top of my hand, or my finger. It lasts maybe 30 seconds or more and then it’ll go away. It’s strange. The pain doesn’t stay. It’s nothing that requires pain medications.
I told my hand therapist about this and she says it sounds to me like you have fibromyalgia. She printed out information on fibromyalgia and gave it to me. I did have the symptoms, so I assumed that’s what I’ve got."
Woody is a strong woman both in constitution and personality. Although fibro often goes hand-in-hand with lupus, the assumption of fibro and its symptoms puzzles me. In the 90s, fibro was barely known, and not readily accepted by the medical community.
According to Woody, "I don't have much pain. The fatigue is probably a combination of the fibro and lupus.I take vitamins and I follow health rules. I don’t smoke. I don’t drink. I had four hours of sleep last night so when I came home from church I was a little tired. But sometimes I can overcome it without too much trouble. It’s normal, at least compared to what some people go through. I don’t suffer too much."
Thursday, March 15, 2012
I am talking about needy people. We all know someone like this, and we all have our needy moments. Needy people crave attention. They always one-up you. If you're sick, they're sicker. If you're injured, they were injured worse. If you met someone famous, they met someone even more famous. Good or bad, they can always top you.
Mistakenly, you might respond to a needy person's complaint with a helpful suggestion. Of course, the needy person replies "I have tried that and it just doesn't work. I am so much more sensitive than other people."
It is even possible a needy person's way of looking at life is making him sick and miserable. This could be a sign of untreated anxiety or depression. Regardless, it is exhausting to deal with a needy person. Like a black hole, they suck out all your energy,
Now imagine you're a busy doctor with many patients to treat, and one of them happens to be a needy person. It must be extemely frustrating to have a patient who returns repeatedly with symptoms you just can't help.
Doctors don't refer to these people as needy people, they call them difficult patients, and there are attributes that define this type of patient:
Friday, February 17, 2012
Let's take a moment to compare the symptoms and diagnosis of conversion disorder versus fibromyalgia as shown on the Mayo Clinic's website.
Conversion Disorder (Mass Hysteria)
Conversion disorder symptoms usually appear suddenly after a stressful event. Common symptoms can include:
· Poor coordination or balance
· Paralysis in an arm or leg
· Difficulty swallowing or "a lump in the throat"
· Inability to speak
· Vision problems, including double vision and blindness
· Seizures or convulsions
Other conversion disorder symptoms include:
· Loss of balance
· Numbness or loss of the touch sensation
· Inability to feel pain
· Difficulty with walking
· Urinary retention
The pain associated with fibromyalgia often is described as a constant dull ache, typically arising from muscles. To be considered widespread, the pain must occur on both sides of your body and above and below your waist.
Fibromyalgia is characterized by additional pain when firm pressure is applied to specific areas of your body, called tender points. Tender point locations include:
· Back of the head
· Between shoulder blades
· Top of shoulders
· Front sides of neck
· Upper chest
· Outer elbows
· Upper hips
· Sides of hips
· Inner knees
Fatigue and sleep disturbances:
People with fibromyalgia often awaken tired, even though they report sleeping for long periods of time. Sleep is frequently disrupted by pain, and many patients with fibromyalgia have other sleep disorders, such as restless legs syndrome and sleep apnea, that further worsen symptoms.
Many people who have fibromyalgia also may have:
· Irritable bowel syndrome
You must have one or more symptoms you can't control that affect movement of part of your body or your senses. These symptoms must seem as if they could be caused by a neurological or other medical condition.
· Your symptoms must have occurred after a stressful event.
· You're not producing symptoms on purpose.
· Your symptoms aren't fully explained by a general medical condition, drug use or a culturally accepted behavior, such as experiencing visions at a religious ritual.
· Your symptoms must cause significant stress or difficulty in social, work or other settings.
· Your symptoms aren't limited to pain or sexual problems, and aren't better accounted for by another mental health problem.
· Widespread pain lasting at least three months
· No other underlying condition that might be causing the pain
· At least 11 positive tender points — out of a total possible of 18 (1990 criteria)
The biggest contrast between the two disorders is that conversion disorder comes on suddenly, and usually resolves itself in weeks. Wide-spread pain has to be experienced for three months or more before a diagnosis of fibromyalgia is even considered. I cannot even see the sense in lumping these two disorders together.
In my last post I defined many of the terms in Dr. Kaddoch's letter. I would like to take a closer look at psychosomatic.
"Psychosomatic: pertaining to the mind-body relationship; having bodily symptoms of psychic, emotional, or mental origin."
Many illnesses can be related to the mind. The mind is very powerful, and under the right conditions, can cause stress to manifest in very physical ways. A very simple example of this is experiencing some sort of digestive problem in an unpleasant situation. A friend of mine, used to break out in hives before giving presentations. Although this might be considered psychosomatic, it certainly isn't conversion disorder. Nor in most cases, does it require medical intervention.
I will not disagree that fibromyalgia can have psychosomatic links, but so can arthritis, or a broken leg, or anything else that causes stress or discomfort in your life. By the same token, just as a stomachache can be brought on by stress, so can the symptoms of fibromyalgia. Does this mean that stomachaches, fibromyalgia, and conversion disorder all originate in the mind? To make this leap is irrational and irresponsible.
It is very possible that fibromyalgia is over-diagnosed. After all, a doctor is frustrated by someone who is always in pain, to which no direct cause can be found, such as a broken bone. How do you treat this? Label it. If you place a label like fibromyalgia on something frustrating, then you've made a diagnosis, and you can move on. It's simple, the doctor can now say there are treatments but no cures, and if the doctor's really lucky, maybe the patient will be unhappy with her treatment and diagnosis and take her business elsewhere.
Then there are the disbelievers. Your fibromyalgia is in your head. It will go away on it's own. Or you could try engaging in some talk therapy. That should solve the problem. I could talk until I am blue in the face, and my fibro is not going to suddenly resolve itself. It may be less pervasive because I addressed the stress, but I have not treated the physical, which I strongly believe exists.
This is not fair to all doctors, but people are human, and it is readily believable that there are a few who behave in this way. Just because a doctor cannot find a cause for symptoms, doesn't mean there isn't one. Science is still evolving. Doctors and scientists do not know everything. If they did, there would be cures for cancer and diabetes. The body is a very complicated piece of machinery. The day that science can explain everything that happens is the day that scientists become equal with God. We are not even close to that point. It is arrogant to assume that because you can't trace a symptom to something tangible, that the tangible cause does not exist. It just means you don't know enough yet.
Thursday, February 16, 2012
New York City
Tuesday, January 31, 2012
As a whole, life is good. Despite the warm winter, I am skiing and racing. This gives me plenty of opportunity for fresh air, exercise, and good friends. But there is also a very stressful side to my life. I am caring for aging parents, one of which has a lot of health problems. This is the reason I became interested in writing about fibro. The last three years consisted of moving elderly parents out of the home they lived in for 40 years and becoming their home health aide. This has taken quite a toll on me.
Before this time, my fibro was a mere inconvenience. I paid little attention to it. As the caregiving began, the stress it created in my life intensified all the symptoms. It became much harder to ignore. I was exhausted all the time. Dealing with my parents in good times is rocky at best. When I am exhausted, I don't deal well with all the drama. The more exhausted I get, the more I start to ache, and the less able I am to cope with my parents.
This set me to wondering, how do others do it? That became the starting point for my book. Now, I need to focus on what I want to accomplish. What is my ultimate goal, and what are the objectives for achieving this goal? That's the instructional designer in me. The artistic side of me wants to know "what is my slant?" "How do I make this interesting for others?" "Do I need to do more interviews?"
While I grapple with these issues, I will continue to blog as the muse strikes me, and plug away on the last transcription.
Tuesday, January 17, 2012